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God's Full Circle

We met a precious family with NKH this past weekend. They drove to our home on their way home from a family vacation headed back to Kentucky. I had been speaking with the mom for over a year about diet options and the wa

April/May Update

Things have been so busy. I hear so many families say this, and although our April/May might look different than most, I completely feel this deep in my bones!April and May have been meetings every week, project updates

Watch the 1 Min Video Update

Meet Eric and Tarah O'Sullivan, parents to Drake and Vivian, and founders of the Drake Rayden Foundation. Watch their one minute video explaining the importance of the HeIsEnough Event on November 18th.

The Time Has Come...HEISENOUGH Event

Join us for one night, our final ask, where we lay

Costly Obedience…

Friday morning we had just finished a call. Eric and I were in the middle of talking to the kids about how faithful their Heavenly Father was. The goodness and love we saw on that zoom was hard to put into words…The peop

Today Is My Birthday!

Today is my birthday, and as Drake and Vivian's mother, I find myself asking for the same thing every year. "Father, please..."

Grateful...

I don't know if I have ever been truly grateful for time. When you are young, all you think about is growing older. When you are older...

The First 24

The hours after Vivian's birth was a bit of a blur. We had decided to induce her around 39 weeks and three days due to me being dilated, and the now known genetic abnormalities that laid hauntingly in our genes. My OB ha

Vivian...alive; lively, bubbling with life

I typed in my search bar early this morning.."What does the name Vivian mean in the Bible?"....The search populated and it caught me with such sweet overwhelming assurance of Father's goodness...Wikipedia: Vivian means .

Failing FORWARD...

I avoided this day for weeks... I wanted so badly for him to be able to communicate, to show us something, to PROVE he was in there. In there the way we know he is, and finally to be able to show others his voice. I even

Why Not Me?

Thanksgiving was this past week and like many of you, we are still recovering from all the wonderful food. This time of year is so fun as we know that certain dishes are only made close to the holidays. The kids and I en

Life is but a Vapor...

Yesterday I was sitting with our PT discussing some pretty severe issues we are seeing with Drake’s scoliosis and his poor little legs. His left leg is swelling and we aren’t sure of how or why. We are reaching out to ou

The Crippled Lamb and Crying Over Hamburger Meat

Ever heard the saying “don’t cry over spilt milk”... Well, last night I cried over hamburger meat. Before you try to guess, no I am not pregnant. And besides, I was never a super emotional pregnant lady....I was the "nau

Lifeline Partners Spotlight: THE BURGESS FAMILY

GOD HAD EQUIPPED US FOR THE JOURNEY HE SET BEFORE US We first met the Burgess family a few years ago when our paths crossed at church. When their son Will was

July 1st Update

Update July 1st, 2019 Drake is finally starting to get back to his baseline for seizures, thank Jesus. The last few weeks have been really hard. We fear Drake is going back to the cycle of walking on egg shells every few

Your Carolina with Jack and Megan Appearance

We are very grateful for the opportunity to speak with Jack and Demarcus on Your Carolina to help spread awareness for Drake and our Saving Drake Campaign to fund the Gene Therapy Project for NKH. Please check out the vi

May 30th Update

WE ARE SO CLOSE, WITH ANOTHER MATCH TODAY!!

May 29th UPDATE

We are SO CLOSE!! Just $10 more dollars could help us get UNDER $10,000 of our $70,000 to start our Gene Therapy! Please donate today!

May 24th UPDATE

Please watch our video to check out our latest updates.

May 23rd UPDATE

May 22nd UPDATE

20% in the FIRST 24 HOURS!!!

We are blown away and can't thank you enough for all the shares and the donations. Please KEEP SHARING! It is working!! WE HAVE TO MAKE IT TO $70,000 TO START THE GENE THERAPY PROJECT!

TODAY IS THE DAY!

Please watch our video to see our exciting news about an amazing opportunity God has opened up for Drake, and other children suffering with NKH.

Ponce Realty Group

We want to say a massive thank you to ALL the realtors at Ponce Realty Group. This amazing, amazing group of realtors collectively donated $2,800.00 to the Drake Rayden Foundation through the months of April to July! We

Faith, Hope, Cure for NKH

In the past ten days we have lost two children to NKH. Two beautiful children ….gone…to a preventable death…… Two families have suffered the worst loss any parent, or child, could experience. To an NKH community of less

DRF Cares

The Drake Rayden Foundation fights for better treatment for NKH through raising funds and encouraging research. We also want to be a pillar of support for the families directly affected by NKH. This is Lori Harris, and h

Future Plans

We wanted to update on Drake’s progress and the foundation’s direction. First, let me say… thank you…..thank you for all your prayers, your cards, photos of you wearing our t-shirts, setting up times for us to come share

Lemonade Stands

Our kids, and their friends in the neighborhood, have wanted to do something to have their own "fundraiser" for Drake... I came home from therapy the other day with Drake and I was met in the cul-de-sac with lemonade and