Gifts given for Drake and Vivian's gene therapy go directly toward the project: manufacturing EmetAbba, the one-dose AAV therapy, and the remaining steps needed to bring it to the planned trial at MUSC in Charleston.
This campaign isn't saving up for a someday project. The family has explained that donations are paid to the manufacturers as they come in, because the work is happening now. In the family's words, if the funding isn't there, drug development stops. That's why every gift, large or small, matters right now.
The foundation updates the total weekly on the GoFundMe campaign, combining GoFundMe, check, PayPal, and Venmo gifts, so donors can watch the remaining balance shrink.
Have a question about how funds are managed, or what happens if the project raises more than it needs? Please email Info@DrakeRaydenFoundation.com, and the foundation will answer directly. Beyond this project, the foundation's ongoing mission includes NKH awareness, better treatment, and care for special needs families.
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