How can journalists or media contact the O'Sullivan family?

Media coverage has played a big role in Drake and Vivian's story, from local TV features in South Carolina to coverage in Ohio tied to the gene therapy's manufacturing partner. The family welcomes interest from journalists, podcasters, and creators who want to help tell the story accurately.

To request an interview, email Info@DrakeRaydenFoundation.com with your name, outlet, deadline, and what you have in mind. Because Tarah and Eric provide round-the-clock care for two medically complex children, please allow some flexibility in scheduling, and understand that in-person visits may depend on the children's health.

Our press kit includes approved photos, a fact sheet, and background on NKH and the gene therapy. A few accuracy notes: the therapy is a potentially curative, first-in-human trial, not a proven cure; the trial is planned at MUSC in Charleston for late 2026; and some research and partner details are confidential, so please confirm any partner names or regulatory details with the family before publication.

Thank you for helping more people meet Drake and Vivian. Coverage often leads directly to gifts, and the family has seen a single post raise more than $20,000 in a week.

Sources: Saving Drake and Vivian (GoFundMe updates)