How can I support a family whose child has NKH or a rare disease?

Families caring for a child with nonketotic hyperglycinemia live with constant medical demands, interrupted sleep, and frequent hospital stays. Support doesn't have to be dramatic to matter. Meals, groceries, yard work, rides for siblings, a gift card, or simply a text that says "thinking of you today" can carry a family through a hard week.

Remember the siblings. Brothers and sisters of medically complex kids often need someone to come to their game or recital. And keep showing up. Help tends to pour in at diagnosis and fade later, when families need it just as much.

Ask before visiting. Children with NKH can be very vulnerable to infections, so a quick check on timing and health matters.

For Drake and Vivian specifically, the most meaningful help right now is getting them to their gene therapy trial. Tarah has a simple way of putting it: "Just do something. Because nothing is not an option." You can give, share their story, pray with the family, or find a role that fits you on our ways to help page.

Sources: Saving Drake and Vivian (GoFundMe updates)