Drake was born on October 13, 2016, and celebrated his 10th birthday in October 2026. Vivian was born on August 21, 2019, and turned 7 in August 2026.
Those numbers mean more than they seem. When Drake was a newborn, his parents were told to expect weeks to months, and later three to five years. With severe NKH, many children never reach their first birthday. A decade with Drake is something his family never takes for granted. On his 10th birthday, Tarah wrote that they could never have written such a miraculous ending to a decade, one that also launches a new beginning.
Birthdays have also become a way for the community to help. For years, the family has hosted birthday fundraisers between August and October. When Drake turned one, Tarah wrote: "Happy Birthday our brave, strong, warrior….. you will change the world…. you have already changed ours"
Want to celebrate them? A birthday gift toward their gene therapy trial is one of the most meaningful ways. Give in Drake and Vivian's honor or start your own fundraiser.
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Every $1,000 covers one inch of the trial. $252,210 to go.
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